You are going to hear a lot of the same progress this week... Just hoping it continues to trend positively, as she is today. Docs are continuing to ween the nitric she was at 2 in the wee hours of the morning, they will hopefully take her to a 1 this afternoon and by tomorrow we are looking at loosing yet another machine! This is a very agressive weeing schedule. They are pushing her hard because they really want to get her off the vent. So the doctors have brought in a specifically designed machine that we are told is intended to protect from all sorts of infection and is specially designed for Ava.
She has started fighting it quite a bit- meaning she is pushing back on the help it is giving her. This creates a double edge sword. They are happy to see she is breathing well on her own but then she still needs help in some aspects with the oxygen pressure... If they are able to continue this aggressive schedule they say she could be off the vent as soon as the end of this week! She will step down to a cpap machine. We are thrilled about this news- sounds silly but we still have never heard her cry. Because the vent goes straight down her throat her vocal cords cannot connect. Just can't wait to hear what those pipes sound like!... You might be hearing different from me in the next couple of months, lol!
Her stats have been a bit more elevated- not in a scary range- just at a point that we know she is really ticked off that she still has a tube down her throat. But st this stage of the game being ticked off is good. Because she is moving around her blood circulates better. It is hard to see because we know when she is crying but we really can't do much to comfort her other than talk to her.
Matthew and I don't really know what to do with no kids around. Feels so odd. Kind of a timewarp. We went to a movie last night- a very normal person activity!
Aww keep up the good work Ava 💖. Continued prayers and love!!
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