Matthew and I got to head home together for the first time in two weeks. We took our super heroes trick-or-treating around the neighborhood and got to see the Olde Oak Crew for a while as well. So nice to be home and have some normal family time! Nana got to spend some quality one on one time with Ava while we were home, thanks Mom!
Ava is 2 weeks old today! She is doing really good.... After several x-Rays they have decided that the puking is either a side effect from the medicine (she has been on a ton) or that she has reflux (Ryan also had this- common baby issue). All x-Rays came back "inconclusive" - which in their book means no big issue is happening.
We also had some awesome news on her echo. Doctor Taylor (the resident) says that her Pulmonary Hypertension is resolved at this point. This was the problem with the pressure inside her lungs. A refresher - you need to have a lower pressure in your lungs than the rest of your body so that the blood and oxygen can travel outward through your body. So, for now, this major issue has been resolved. This means that we can continue weening completely off the nitric. Which we are down to 5 (from originally 20). We will ween by 1 each day. Possibly 2 if her stats continue to look good!
On a very sad note, Matthew's grandmother passed away unexpectantly yesterday afternoon. She had knee replacement surgery about 2 weeks ago and they believe that she threw a clot. She was an amazing lady that lived a great life constantly surrounded by family. She had 9 children, 24 first grandchildren and Ava was her 21st great-grandchild! The pic below is from the 2013 Benoit Family Frolic at the family farm... I believe the count was 71 people!
Ava Jane has one more angel looking over her tonight... "Big Mimi you be greatly missed!!!
Xoxo
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