Tuesday, December 2, 2014

Tuesday 12/2/14

"Seriously Mom, I am a city girl!"


After many phone calls between Riverside, our pediatrician and the insurance company we have come to the conclusion that we are going to keep Ava in the city for now.  We came to this decision based on a few thoughts... 

Comer's provides an environment that allows her to rest peacefully and to feed without distractions.


If we were to send Ava back to Riverside she would be placed in the gen pop with all of the other babies.  With all of the distractions and commotion of a nursery I feel that this could possibly cause a set back in her eating (her best feedings are with little to no distractions, noise, etc).  


Plus she only would get 20 mins in the yard everyday to hang with Red and Andy. 


Also, Riverside does not have all of the resources for infant care that Comer's provides.  Most importantly the physical therapy and speech therapy that Ava is receiving on a regular basis - speech comes daily. We were pretty confused the first time they said they were gonna send a speech therapist to meet with us too. She works with us and Ava to show us how to support her jaw, how to hold  the bottle, what signs to looks for when she is ready to eat. So not so much actual speech related but more actions. 

And what made the final decision is our insurance will not pay for a non-emergency transfer.  Although not as much as a helicopter ride (a full year of tuition at a private college).... It is still really pricey.  So although it would be really nice to be closer to home looks like we have a while longer at Comer's.

I am still staying at the Ronald house for now.  It still proves to be a wonderful escape at the end of everyday. So thankful to all of the friendly and now familiar faces I see here everyday.  

As far as Ava eating today- the bottle is a much better fit.  However she is having issues with the formula/spitting up/irritated gut.  We are not sure if it is due to the narcotics, formula intolerance, constipation or from reflux.  Or a combination of the three - which is the most likely answer.  

She is visibly uncomfortable and pissed when giving her the bottle.  She is rooting and sucking on the pacifier really well but knows our tricks now and screams when we put the bottle to her mouth.  She still seems to react better with breast milk but I just don't produce enough.  It's a puzzle for sure.... 

The final day of the morphine ween is today.  Tomorrow will be her first day without any drugs in her body at all!!  We have fone from having 13 different IV pumps down to none!!  

Picture from 10/23/14 (6th day)

Since she is a full term baby they could hang on in her system for a couple days after but that we should start seeing true sleep patterns and less/no side effects from those drugs within days.  She has had a hard time with the #2s (that means poops in our house) which also has made an impact on the feeding.  These narcotic drugs tend to slow those systems a bit so maybe some of those issues could be resolved. 

Matthew and I are going to switch rolls toward the end of the week.  He is going to head up to see his baby girl and I get to hang with the dudes.  Going to set up Christmas on Thursday- probably one of my favorite things to do all year!  

Speaking of Christmas... Georgie made his appearance today for the holiday season!  The Spidey-man crew at our house did not know what to think... maybe even felt a little threatened!  Mason had a serious talk with them (with his very big eyes and lots of hand talking) explaining who Georgie was and that he was definitely "not one of the bad guys."  Georgie has been with us for a couple years now but Mason is really concerned this year already about making sure he is really extra good!

And for those who know the real Georgie Hemenover we like to think that when our Georgie comes around each year how much he would have loved to know all his great grandkids. 

Just not sure if there is enough "Hey there sweetie" or "Hey there buddies" to go around!!!  


And yes, we do own five of the same action figures.

Xoxo

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