As of today they are no longer treating Ava as an acute patient but as chronic patient. Small step! She is still listed as a 5 - on the critical list, but over the initial hump.
Because of this we are now trying to ween her of assistance and drugs. Today they have taken her off the dopamine- this is the drug that helped to keep her blood pressure up. Docs wanted it higher than a typical baby while she was so sick. They have also decreased the rate and pressure of oxygen being pumped into her lungs. She has had no signs of infection so they have stopped giving her the antibiotics. She is also getting a dose of Nexeum to help keep her stomach settled. 
Matthew is staying with her tonight and I am heading home to spend some time with the boys! 💗
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